KIM, thanks for your comments – you got me thinking about school again and about a conversation Rog and I had a few days before. I am not DEF. going to school in the fall. I’d LIKE to but things would have to be a lot different in a short time. Chris needs LOTS of work, and so do the other kids. Our house is getting a lot better on organization but it takes a lot of time and there’s two more rooms to remodel so that will bring more chaos. I’m simply going to gather information so I’m ready when the time comes. Do our financial aid papers, apply, etc. My gut feeling is that I won’t go until at least winter. It may be not until 2007 when Ryan starts kindergarten. Just don’t know!
Author: criscollrj
a little update finally —
You’re a Speak & Spell!! You nerd, you. Just
because you were disguised as a toy doesn’t
mean you weren’t educational, you sneaky
bastard.
What childhood toy from the 80s are you?
brought to you by Quizilla
it is a lazy Sunday and I have SO much cleaning to do.
Last I wrote Chris was having a VERY VERY VERY bad time. We had an awful 4 months – February – sinus infections, ear infections with ear injury from hitting; March, 2 ear surgeries, missed most of the whole month off of school, plus drug reaction to Seroquel/Risperdol and withdrawal; April, entire month, I believe, from school, just about (he may have gone a week or so), had 1-2 more sinus infections; May, Tonsillectomy/Adenoidectomy, and finally had to start more meds as he was still being aggressive, self-injurious, and very very upset and not sleeping at all hardly (like 3-4 hours every few days is all); and June started horribly as well but FINALLY last 3-4 days his new meds (Tenex) is kicking in and he’s sleeping a little more and is seeming happier. FINALLY.
(2020 pans/pandas)
100 years of college?
what do you think 🙂
Continue reading “100 years of college?”
survey
I MUST UPDATE SOON. Prayers for Chris, however, GREATLY appreciated. Things have deteriorated so much we’re considering other placement for him….. sad. SURVEY HERE, mindless but distracting and kinda fun 🙂
another 2020 note to check more about any infections, fevers, possibly linked to Pans/Pandas.
surveys again….
long time no see! tired… up with chris who I HOPE is just about asleep, so some surveys for now….
1. What is/are your middle name(s)? Ann
2. If you had been born the other sex, did your parents tell you what your name would have been? Michael David or David Michael!
3. Do you have children and if so, what are their names? 13 year old Christopher Owen, 9 year old Colleen Renee, 2 year old Ryan Joseph
4. If you were to ever have a child or more children, what would you name them? I’m done, but we also liked Craig, Danielle, Shannon, Rhiannon (yep if Ryan would have been twins Ryan and Rhiannon would have been interesting!)
please fill out question poll (from Heather)
I want everyone who reads this to ask me 3 questions, no more no less. Ask me anything you want. Then, I want you to go to your journal, copy and paste this allowing your friends (including myself) to ask you anything.
NORTH CAROLINA
Yes, I’m obsessed, I even changed my icon and background picture….
I’ll write more later but if anyone has any stories about moving or having lived there and what it’s like PLEASE WRITE ME!
(THe pic is me and Colleen in 1997 off the Blue Ridge Parkway in NC)
anyone familiar with north carolina?
We are again considering moving to North Carolina — I’m sure I’ve never posted it here (at least I don’t think so) as the last time we seriously considered it was 1997.
But with my husband needing to find a new job we are now thinking of it again – since there is a job move in the future anyway we’d like to consider whether to move to NC. We live in NE Ohio.
The reasons we have considered NC is that:
For one thing it is beautiful and close to the mountains and the ocean!
But another more important is that TEACCH for autism is centered down there, and though it is now up in Ohio too it started in NC and I have a feeling there may be more centralized schooling for Chris at all ages and perhaps adult centers as well — I seem to remember that there was, from when we traveled and visited there in 1997.
survey stuff
survey 1 Continue reading “survey stuff”
Tardive dyskinesia
Chris had some strange symptoms at school that developed yesterday with fast blinking eyes, extremely frequent vocalizations, staring upwards, etc., that were very concerning to them that he was having bad reactions to his new med Seroquel. We took him to the pediatrician yesterday and he was prescribed Benadryl to counteract any side effects of the med, and then today we took him to the neurologist who advised us to go off the med gradually and gave us a schedule for that.
We have been reading about tardive dyskinesia – a particularly troubling article is http://www.breggin.com/neuroleptics.html. This article involves schizophrenia and not autism, but it was concerning nonetheless. A more middle of the road article is http://www.ninds.nih.gov/health_and_medical/disorders/tardive_doc.htm. I feel we’re going to try Christopher med-free for a while and perhaps try some nutritional avenues to help him as much as possible. We have been wanting to do this for a while, actually, but we were at the same time afraid to take him off his Risperdal (which he is now off of and is taking Seroquel in its place).
unfortunately now in 2020 neither one of these sites will load — will have to find another.