autism, photos

Summer and picture update

 


When I tried to straighten my hair

Not good results!

Ryan caught me asleep typing …

Colleen and her friend

Colleen having coffee


Chris after his sedated blood tests in May.  They did find out he had elevated triglycerides and low “good” cholesterol.

The man who succeeded in keeping Chris from running out of the hospital before sedation.

Walk Colleen & I took.


cookout





Geese by Mcdonalds!



Ryan fell asleep in my office chair behid me working.

The flat pool – sigh.  The rim leaks.

Anime girls…


Brunch with Lisa and Eric after church.
Me being goofy, playing with my hair.

Ryan playing the drums

Ryan at his sedated ABR – he also had a sedated blood test a week before.  They did fill 4 cavities and found his hearing was unchanged.  they did find a slight genetic prolem which Rog, me and Colleen are all being tested for tomorrow…..

I love the smile!

We saw two awesome sets of fireworks!  Chris didn’t want to leave the one and it took us about 2 hours before he’d get up off the ground!  He watched the second one from the car —
Rog and I went on a date with our friends, and here I am looking like Rosanne Rosanna Danna 😀  This was for our 20th and their 18th anniversary.  It was very very fun at a fish house!

Those goofy guys!

Ryan at the picnic the next day at their house.

Bullet update —

  • I stay very tired.  I should be sleeping now!
  • I have increased from about 1 hour of audio a week to 3-4 hours of audio.  Each hour of audio involves 6-9 hours of work 😛
  • I do love my job.
  • Each boy has 40 hours of aides available to them now.  What a blessing it is!  I just wish we could get steady workers for Ryan.  Our favorite one quit.
  • Chris has had the same aide since 04!  We love her!
  • I have a chronic cough now and no idea why.  I have to go back on Claritin.
  • Roger is working more hours as well and did about 8 hours of transcription today for me.  He’s still doing court research in Ohio and PA.
  • Along with our rise in income, has accompanied a sickening raise in gasoline and food prices.  So we’re not progressing.
  • I love our house and area we live and hope we don’t ever have to leave until we’re ready to retire in North Carolina.
  • I went back to church about 6 weeks ago and am so happy!  I love the praise music especially with the band.
  • I want to play guitar again.  They’re at in-laws after ryan smashed Colleen’s guitar.
  • Ryan is almost potty trained – still having trouble with #2….
  • My house is a wreck and I never have time to clean it.
  • I rely a lot on my family.
children, health, sleep

Kiddo-update

CHRIS:

Chris has slept like 4/5 nights now and we’re so pleased! Dad took him to Home Depo the other day and he had a lot of fun with that, and he also took two walks around our neighborhood. He seems to be doing better after his med adjustment (Abilify went from 10mg to 15mg.)

But we are still pursuing applying for the National Deaf Academy for him. I will be doing that soon.

He is also going to be starting vocational training at a local school for half the day – I think he’ll like that a lot!! It will make his day more interesting – he’ll go to his regular school half day and the other half a day. He may start this year, yet.

His weight was going up but now seems to be stabilized at 200 pounds. I hope he doesn’t gain any more.

COLLEEN:

I filled out app. papers for www.ecotohio.org homeschooling today and plan to fedex to Columbus tonight. I’m pulling Colleen out of school.

The particular homeschool is a public school, not a traditional home school. I could not do a regular home school where it was all up to me. Even this is going to be hard for me, but I trust it will save Colleen. I hope. She’s currently failing 4 classes. She missed 40 days of school this year from illness. If she’s going to continue to be ill often, and continue to be as anxious and sickly (often caused by nerves, I believe) as she is now, I think she’ll thrive in this.

I hope.

“ECOT educates over six thousand students between the ages of five and twenty-one from every county in the state of Ohio.

Running an online school requires as many resources as a traditional public school. In addition to our teachers, a staff of counselors, school administrators, customer service specialists, computer programmers, database managers, school-funding experts, shipping handlers and consultants enable ECOT to work.

ECOT is a public school that relies solely on a fixed per-student state tax allocation, without the addition of property taxes, private funds or donations from special interests. ECOT, as a public school, charges no tuition.

ECOT provides a valuable service for all Ohio students and families seeking an alternative to traditional public education.”

“What sets ECOT apart from other public schools is its home-based online learning environment. ECOT’s ability to provide a statewide K-12 educational environment through its own secure Web-based network, or intranet, is unique. The intranet restricts access to non ECOT-approved Web sites while providing a wide range of teaching tools and educational sites that are appropriate for students of all ages.

Just like other public school students, ECOT students have teachers, counselors, class discussions, report cards and out-of-class trips. Unlike other public school students, however, ECOT students are required to use computer and Internet technology to access their lessons, may never meet their classmates face to face, and are not subject to a dress code!

ECOT parents do not need to educate their children alone: ECOT’s teachers provide quality instruction online and actively engage each student to offer assistance and guidance. Parents have the freedom to directly support their children’s education, while letting ECOT teachers do what they do best: teach.”

RYAN:

His IEP is today, in 2 1/2 hours. I think he’s done pretty well this year. I expect he’ll be at the same school next year for first grade. Can’t believe he’s almost done with kindergarten. He’s writing 3-letter words and is talking much better!

Both boys are getting new hearing aides soon.

That reminds me, Ryan’s lost the battery case off his hearing aide. I need to take it in to Jane to get it fixed…

children, Weather

Ryan’s new aide —


0419200804361

Originally uploaded by

criscollrj

.

8 hours today with Ryan – he is really enjoying her! They were coloring outside while Rog grilled us yummy chicken, burgers, and hot dogs. Chris enjoyed a lot of time outside too and had two walks and an outing to the playground. Ryan also played at the playground for about two hours with his aide.

I cleaned half of Ryan’s room today and D helped me do the dishes. She’ll be back tomorrow!

Chris’s aide should be back in 2-3 days… D likes to help Chris a lot too – she’s a sweet new friend!

children, God, sleep, work at home

All things are possible

Things have been rough in a lot of ways lately – Chris has been staying up all night just about every 2-3 days lately, and there’s been continuous illness it seems with the kids.

But we have a new situation coming up where we will have 40 hours a week of help for the kids. A new aide already started last weekend for Ryan – Her name is Debbie, and her and our other aide Doreen made a good team with us to care for the boys and get a lot of cleaning done!! They will be here 7 days a week 40 hours a week (roughly) each starting next Monday (just 5 more days!). I feel things will greatly improve then – even though we may still be exhausted and sleep deprived.

Work is going fairly well though lately I hadn’t had time to do enough of it!! I have had about 15 hours of audio since early March that I’ve been working on for local clients. Rog is still doing court research and also helping me with transcription and doing some for Rapid Text as well.

We have a lot of plans for more house repairs with problems we’re having with the sewer system in the basement. It’s 95% better than it was three weeks ago though, but need more work.

I’m tired…

I am really hoping NOW we can get back to church – our helpers are coming Sunday mornings now so I can’t see why we can’t…

Now what is amazing that this song came into my head, and I instantly found after that in the list. God is that way for me – songs are my inspiration. Thank you Lord!

 

children, health, sleep, work at home

Spring and smoke are in the air!


0406200804360

Originally uploaded by

criscollrj

.

Our first bonfire of ’08. We and the boys enjoyed the some hot dogs and a beautiful 60 degree day – Colleen and her friend came over later and had fun by the fire. Damp though – we didn’t keep the fire going as long as we will later in the summer, but got some papers burned and just did something different than run errands or sit inside the house.

Work is going slow – not because I don’t have it — I have A LOT — but kids have been sick and life is just so crazy. Probably by the time school’s out they’ll all be healthy and ready to all attend school – heh.

 

children, health, life, transcription, work at home

My latest —

 

Okay, time to do a real goal sheet. Today was my day for planning and uploading audio. I am excited about this work list – it’s probably the most I’ve ever had at once!! May I manage it well —

AUDIO DUE

Hopefully by tomorrow:
36.24

(shouldn’t be a problem if I quit doing admin stuff and get my fingers going…

by Monday:
3.25
14.56
11.05
14.52
23.15
14:28

And these are two a week until they’re done — so —
63
56.27
54.38
57.20
62.10
68.33
56.44
61.07
58.16
56.26
4 1/2 weeks – March 25 or so.

And these are by March 4:
3 hours 43 minutes hearing 😉

And here’s my appts!

* Tomorrow, my boobie ultrasound
* Ryan’s birthday
* Turn in Colleen’s school schedule
* Monday – NO school for Colleen or Ryan
* Their physicals at 8:40 a.m.
* Wed. – vocation program viewing for Chris – I think
* March 7 – audiology appt for Chris at 9
* March 10 – Chris’ physical
* March 12 – Colleen’s dentist
* March 14th – Chris’s psychiatry appt.
* March 17th – Chris’s IEP
* March 18th – Ryan’s sedated ABR, blood tests, dental cleaning
* April 1st – Chris’s sedated ABR, blood tests, dental cleaning, vision screening
* April 2nd – Chris & Ryan’s follow up audiology appt.

And I know Ryan’s IEP will be coming up. We are also meeting soon with MRDD for Ryan to get him on waivers, etc., as an elementary school student. We’re also going to be meeting with more people on other waivers for both boys, as well as new nursing/aides coming in for the boys (yes, most likely both boys, yay!).

I have a lot of calls to make but I think right now I need to just start typing for a few hours – and —

DO MY STINKIN’ DISHES AND LAUNDRY! (literally)

Put on some chicken to stew for dinner.


dori

autism, children, deafness, life, NaBloPoMo

The dreams of children

 

The dreams that we hold about having our children… and the reality given and the new dreams held

Dreams of all my life
The children we always wished for
Years go by like lightning
But the expectations soar

Wanting perfection
Working day and night for our bread
Trying to observe each smile,
accomplishment, and word said

When the progression is difficult
than the way you thought
it can be easy to despair;
when the child doesn’t speak, you doubt

The deafness and the silence, and even times with speech,
yet centered in their self fulfillment,
yet merged with our duty and responsibility
can make you wonder where meaning went

Others don’t understand
the way our lives progress
only in humor can we survive
The surroundings can appear a mess

and the heart, indeed, can be torn
as the love is strong as fire
burning in fierce protection
knows how their odds are dire

Chasing a boy, so active and bright,
running in glee
before he breaks the dishes
and plugs cords into electricity

The older child, a man,
yet speechless he is
locked in his world, caught,
yet we glory at each new task taught

We watch for each new joy
yet fight for rights unknown
the road is full of mire
but the Light of God is shown

copyright criscollrj.com dori 11/24/07

 

birthdays, children, chris, NaBloPoMo

How Strange! And Chris’ birthday

Posted 11-19 on NaBloPoMo (this site was down)

I usually post in my blog first and then copy the link here, but for some reason the blog is down. After all day not being able to access my FTP to load a pic in there – I am suspicious that something is going on with the password. Ah well – after my repeated conversations with our web server I’m sure we’ll figure it out.

Anyway – tomorrow is Chris’s birthday! 17 year ago at this time I was pretty sure I was in labor. I can’t believe it was that long ago yet I remember most every detail. I went to do some laundry at our IL’s and while I was there I started leaking. Being 25 and fairly clueless I waited a while thinking hmmm is this is it? I was pretty sure at this point (9:45 p.m. 17 years ago) that it was labor but still was terrified and didn’t want to call the hospital. At home I took a shower and ate an apple and debating going to sleep (maybe I don’t really want a baby after all?)

After finally calling the hospital and being ordered to come in — why did you wait so long? we took off to the hospital arriving at 1:30 (the time I arrived with all three kids). I sat up and rocked a lot and also lay and drifted, and had a lot of freedom in a nice birthing room and first felt heavy labor about about 5 a.m. or 6.

Christopher Owen was born at 9:04 a.m. 11/20/90 and was a sweet, happy-dispositioned child. He loved nursing and napped well.

He is still the sweetest person. He loves the simple things in life and gets happiness from his magazines, car rides, and good food.

Happy birthday Christopher!

 

children, NaBloPoMo, travel, Weather, work

Fun menu outing AND video camera!

Broke in the digital camera, early Christmas present for us.

Here’s a start:

Going to Erie from Dori H on Vimeo.

And by the way when I said “Open the door” I didn’t mean the car– I can see that would possibly be assumed from my statement

All videos here – and I’m sure this is the site I’ll stick with as they loaded fairly easily (not true at my old photobucket account, not sure why…)

http://www.vimeo.com/user297764