Month: May 2010

children, life, organizing, work, work at home, writing

Trivial and important often reside together

criscollrj

As a person who has always been not so good at multi-tasking, I have had to learn to become quite good at it!

The important things in my mind always are:

  • Taking care of our children and the family’s basic needs.
  • Roger and I getting our work done.
  • Us getting our schoolwork done when we’re in school (Rog from ‘99 to ‘01 and possibly going back next year, me since January of 10).
  • Colleen getting her homework done, trying to get some entertainment/learning activities for Chris, and supervising Ryan in his education pursuits (He’s rather like me where he’s obsessed with school items and loves his alphabet and learning to spell, so that helps – he creates his own educational hobbies!)
  • And just keeping enough clothes to wear to be clean and dishes washed to be sanitary!

So I would always try and do these things first – still am!

But it’s amazing how many other things pile up when you do this.  Things you feel you never have time for.  More dishes that you just can’t get to.  Filing (started that last week as far as cleaning out the file cabinet!).  Grass that needed cut that Rog had been too ill to do (he’s outside now finishing it, and our friends helped us with it last week (pictures coming). 

Then things arise like 500pp of printing needed printed out for various agencies.  Like in one week (happened to me in April).  That means you run out of ink, and have to buy it.  Then you have massive phone calls on this, that and the other.  Every day is full of interruptions.  Necessary interruptions, unnecessary ones, and sometimes annoying ones!  Sometimes pleasant ones!  Sometimes a spontaneous trip to the park is a tremendous treat (hopefully soon!)!

All in all, I’m trying to learn, that it’s not always the important all the time.  Sure, I’m working on getting out my deadlines of the week for work, and do my homework, and cook dinner.  But I don’t want to be a once a year or once every six month blogger any more.  And I want to be spontaneous.  Enjoy Chris today who’s at the house as he didn’t get to go back to school yet after his hospital stay.  Enjoy the trivial.

 

Blessings!

 

autism, chris, deafness, residency, sleep, waiver placement lists, waivers

The brick wall

criscollrj

Getting Chris into the placement he needs (National Deaf Academy, which will meet his psychiatric, physical, deafness, and autism needs) has proven to be quite a challenge.

(2020 – thank goodness, in 2014 they were closed for abuse per my reading)

Chris recently underwent a med change at our local hospital due to increased agitation and other situations. However, the next step necessary to complete this med change is admission into a psychiatric stabilization unit and/or a nursing facility with a psychiatric lock-down stabilization unit. The usual pattern is that the individual gets the med change, has the psychiatric stay in the middle, and then after 30 days would be admitted into a residential center to live or go home if that’s appropriate. Now, Christopher has a likely residential center, that he can be admitted to in 30 days. It’s sounds pretty good, although it’s not perfect, and doesn’t have the extra autism and deafness therapies that Florida will provide. But we believe it will provide Christopher with a structured environment with professionals to meet his physical and medical and psychological needs.

It was very hard to come to this conclusion that Chris needs to go back into residency, but with his needs it had become apparent, and with a placement available, we decided to go ahead and pursue. However, with his needing a med change, we were awaiting an intermediate stay at a psychiatric center, and one could not be found in 5 days of our hospital stay. The social workers tried endlessly to place him but due to his age (either too old or two young) or his deafness or his being non-verbal, no one would accept him. This is in all kinds of centers in probably a 200 mile radius from here.

(2020 note – this was found to not be uncommon.  We tried again in 2017 (Chris had medical/neurological issues again causing him struggles with agitation, and then again with his brother in 2018, who had his own neurological/medical issues where we could not find placement.  Ryan got I/O waiver almost immediately after.  We have also had friends unable to get residential placement to assist in medication adjustments.  

We were floored, completely floored. We also inquired about how we can get funding for him to go right now to the Florida center. There is no funding known for it, though I have not stopped looking. The center says we have to pay for it with MRDD or Mentor Health Board moneys – we check with mental health board and they say MRDD should pay – and MRDD says they don’t have the funds for that at this point – we believe we need his I/O waiver to pay for it, which may come at some distant date – 10-15-20 years from now?

(2020, again so glad he did not go to the Florida center!)

Continue reading “The brick wall” →

children, chris, colleen, reflections, Ryan

8 years old – thoughts

criscollrj

chrisbed 552d Photo268

As Ryan (here eating fries when we briefly stopped at the park a few weeks ago) was climbing on my lap today, I started thinking about how soon that may be getting harder for him to do.  He is a tall boy, still skinny, and can still fit upon my lap even though it’s a little poky in places :D.  I have to remember to appreciate that and cherish a little boy on my lap, as the years go so fast.

I remember when Chris (above, left) crawled into our laps and in our bed every night to sleep.  He loved to be held and would just laugh and laugh.  He loved to lay down with his dad and play tickle games and play with his toys. 

Colleen wasn’t so much a lap person but she loved to sit with us, especially her dad, and play her animal games.  She did that a lot at age eight, and had a game called the cows that she played with her dad about imaginary animals and their conversations.

Now Ryan is over eight years old, and where is the time going?  It just seems the childhood ages are going past me – Chris going to be 20, Colleen’s 16th birthday is in 11 days, and they’re growing up before my eyes.

 

college, organizing, transcription

A week off!

criscollrj

Mostly – ha ha.

To do —

  • Take transcription test for Allegis insurance today (step 5 of the application).  Trying to add another backup contract as my favorite backup contract lost their whole department last week and we all lost our contracts.  Don’t want to have less than three eggs in the basket . . .
  • Do just 40 minutes of audio by Thursday – yay, that is SO like a week off!
  • Spend a great day with Chris tomorrow – want to make him a great dinner!  Hope to have Rog visit too – he should be home VERY soon!!
  • Play with Ryan at the park today where I’m dropping off Colleen for her “Otaku Picnic” – it’s not one we go to a lot so Ryan should love it!
  • Clean office this weekend and finish going through files (haven’t gone through them since 2008).
  • Monday and Tuesday CLEAN MY BEDROOM THOROUGHLY.  It has been a long time since I did this – I won’t say how long (not even sure!)
  • Wed. Ryan goes to Cleveland for dentist – special needs clinic.
  • Thurs. Drs. appt with Chris

Things are going fairly well – enjoying the spring weather – hope it’s not immediately 90 degrees as I’m really enjoying 60s and 70s.  On my break from school this week too.  Should have my grade from Spring semesters (which was my first back) by next week — Enjoyed presenting on music and religion yesterday in class.  Did powerpoint and word document.

summer – first algebra class and computer class, both online.