I was young and now I am old, yet I have never seen the righteous forsaken or their children begging bread. Ps. 37:25

things seem to have not changed much in 6 years…   Leave a comment

In 2010 we tried to get Chris into a medical placement to help adjust his meds, to no avail.  I posted about it http://www.criscollrj.com/2010/05/23/the-brick-wall/ .  After that in 2011 we did manage to get a waiver and group home placement (in 2012), and I’m so grateful.  I also can work for Chris there which is a blessing, as I can still spend time with him and see how he’s doing.  But we never were afforded at that time a medical adjustment placement, to see if we have the best mix of medicines possible for him.  Soon he is seeing a sleep expert, and I hope we get some answers there.  His sleep and behaviors are all over the place.

I will add that prior to that, in 2004, we did receive a med adjustment, with the urging of his psychiatrist.  He was just 13 then and had a 10-11 day stay.  He had good results after that that lasted two years.  But as an adult he did not get a med adjustment placement.

However, posting this for a friend of mine (below) who is having similar trouble placing her son, but he is only 9!!  You would think it would be easier to get help for a child than an adult!  Sharing to bring awareness and hopefully more ideas for help for her, and changes to the system….

I have a bit of a long story that people need to know about. I live in Duncan, OK. I need someone to listen and bring light to this devastating situation. My family is being failed by the Oklahoma Health Care Authority and lack of services available for children with Autism in this state. I hope that by getting the word out, some change will come and my son will be given the help he desperately needs. Some background:

My son is 8 years old. He has severe Autism and is nonverbal. He is globally developmentally delayed. He is also very aggressive. Sometimes his triggers are apparent and sometimes he just snaps. He is nearly 5 feet tall and weighs 90+ pounds. He has been aggressive since he was 2 years old. He has been getting more and more destructive the last 6 months or so. On July 14th, my fiance and I took him to Shadow Mountain in Tulsa in hopes that he would be admitted to their inpatient program because his aggressive tendencies were becoming increasingly worse. After driving all the way to Tulsa, we were told that even though they could see that he needs help, they couldn’t help him because he was “too delayed” and with him being nonverbal, he wouldn’t be able to participate in therapy. We were heartbroken but used to being told that there was no help. Services in Oklahoma are TERRIBLE for Autism, especially severe Autism.

On July 16th, my fiancé’s mother was sitting with our children when my son completely lost it. He attacked his Nana and his baby sister. They were both left with bleeding wounds from bites all over their bodies. He had also bitten a portion of his 3 year old sister’s ear completely off. Police and EMS were called. Both of my kids along with their Nana were taken to the hospital. DHS became involved. We were told that night that our kids had to be separated. They were not allowed to be under the same roof. By the time we got to the hospital, DHS had already had my daughter released to go home with her Nana. They made sure that she was gone before we could get there. Duncan Regional refused to keep my son because “he wasn’t their responsibility.” DHS made it very clear that my daughter couldn’t be in the same house as my son. The worker told my kids’ Nana that if she found out that we had been allowed to see our daughter and our son was present, she’d have our little girl taken away.
Read the rest of this entry »

Posted September 7, 2016 by Dori in autism, residency, Uncategorized

Christmas Newsletter 2015   Leave a comment

2015-12-16 08.42.44 2015-12-25 03.04.18


Well, all we continue to say after last year is that we are so glad Roger is with us this year!!  As I wrote last year, he was in the rehab center all last Christmas and it continued into February.  He was finally able to come out then and recuperated at his parents’ until sometime in March.  We were so happy to finally see some strength return by about April and May, and I continued to do a lot of work with him on data entry.  We truly are a team!

We still go to our Youngstown courthouse every few weeks and enjoy getting a lunch together at a local Chinese restaurant.  We also were blessed to enjoy a family vacation (http://www.criscollrj.com/2015/10/22/october-2015-maryland-vacation/) for the first time in 9 years.  Even though it was a bit colder than expected (with a little snow even!), we all really really enjoyed it and hope to return again soon.

We did completely have our basement renovated last year–as I wrote in the last newsletter that said renovation had begun–and then had our bathroom repaired in May.  With school again from July until just a few days ago, I am yet again ready to start cleaning out corners and cobwebs and ready to finally get Ryan in his own room as we had planned last summer, that didn’t happen.  I am on another term break now until March 1, when I will start yet another semester.  Three more semesters until student teaching!  A bit scary, actually…

We returned to Kraynak’s again a few weeks ago with our friends the Jevnikars, and reunited with my high school friends Annette and her family, and also our mutual friend Becky.  It was very enjoyable, and we especially found delicious the food at a new place, Hickory Grill.  We had unseasonable warmth through much of December except for a few brief snows.  It has been in the 60s this Christmas week. Strange to see daffodils coming up in places — will they come back in the spring?

We were thrilled for Chris to be enrolled in a new workshop in October where the focus is on autism intervention/training for workshop.  He is doing so much better and also has seen a new medical expert that has tried some new medicines for him.  He is sleeping better and is usually in a great temperament!

Colleen found a fantastic job this year and has been working since April at a pet store.  She is a lizard/fish expert and that of course is right up her alley.  She works a lot of hours and is very content with that.

Ryan moved on to the high school this year, in the 8th grade.  He continues to excel in his academics and made honor roll this semester!  He is now taller than all of us except Roger.

With all of the things that have occurred in this past year and before, we continue to trust that God has us all in His Hand and is watching over us.  We have had many challenges and trials, but am so grateful that many things are resolved now, with just a bit more to get through yet.  Some time ago this popped into my head, particularly the part that begins at 2:14


I didn’t realize I posted this on Facebook on December 10, 2014.   Guess I should have posted it on last year’s newsletter, but here it comes now for some reason…

From Facebook 12/10/14:  “This is a song I used to sing all the time in high school, and I’d forgotten about it. Starting about 1:03, listen to this song (though the first song is good too!). The part that says “I want to thank you for the gift of your son,” just randomly came in my head when I got home from the hospital today, at 2:13 on the track. Word for word it came out of my mouth, and I hadn’t heard the song in about 33 years. I felt like thanking God for seeing Roger today and that things hopefully are going to look up soon, and I thanked God, and then just started singing this song. Didn’t even know who it was by until I found on YouTube! Just knew I was in high school probably when it came out. I needed to hear the words today… been such a struggle.”

“I want to thank You for the gift of Your Son,
And for the mystery of prayer,
And for the faith to doubt and yet believe
That You’re really there.

The mysteries of Your Word are the questions of my days.
I search them now to understand the wisdom of Your ways.
Jesus walks before me and clearly walks the path
To guide me to the Father and to peace at last”


  1. Chris visiting Daddy in the hospital, Jan ’14
  2. Rog programming his new IPhone 5c
  3. The place where Rog should be sitting in Youngstown court next to me…


4.  I am at Youngstown Courthouse

5.  February 2015 – and the snow just keeps coming.

6.  And the cold!

A particular memory is how the heat quit working in my car when I was driving to Youngstown, and the real temperature outside was -17.  Talk about cold toes!!  Later found out it was my radiator, which I had replaced in May of 15.  You’ll see below what happened in June…


7.  February – the amazing photobombing bird!

8.  A start to one of Colleen’s amazing paintings.

9.  Ryan writes so much like I did..


10.  The cold just keeps up.

11.  March – painting almost done!

12.  Rog is back at his mom’s, and we finally had Ryan’s and my birthday parties!!



13.  Boys at mama’s and papa’s house.

14. Ryan’s SpecialSports Basketball 🙂

15. March also finally got Rog back in that special chair at Youngstown Courthouse!


16.  That was an amazing temp after all that cold!

17.  April brought new glasses, after years, that turned to sunglasses!

18.  Colleen’s beautiful sculpture.


19.  Another one of her gorgeous art show entries.

20.   Rog and I got to Meadville to work May 1 and ate at 5 guys!

21.   Ryan at the football camp in May for Specialsports!


21.  It was Flag football…

22.  Got our bathroom redone in May!

23.  Colleen turned 21!

10329874_10207148072398778_1163145983457371079_o 11393655_10207207168476143_6324556786937872980_o

24.  June – Ryan’s really enjoying summer!

25. End of June said goodbye to Old Bess after she caught on fire.  13 years — 195,000 mi.  Yep, a month after replacing radiator.  I was pouring radiator fluid and power steering fluid in it for months…


26.  A few weeks later this 2014 T & C joined our family.  30,000 miles, and now it’s already up to almost 44,000.

27.  Sophie and I enjoying our  basement, much nicer after the Christmas ’14 repair!

28. July, a little trip we took Chris on where Colleen was doing some fishing.

11312687_10207099178656465_8377033104179640975_o2015-08-15 19.32.482015-04-29 11.38.21

29.  Mom and her friend Allen Helm helped us plant a lot of beautiful plants and shrubs my uncle Don gave.

30.  I saw Rainbows on Chris’s wall on 3-4 separate occasions this year, amidst worry and struggle.

31.  Sometime the summer/fall Peach went to live with my mom.  She is flourishing!  She lost her “sister” Pumpkin a few months before that.   

2015-07-25 18.13.592015-08-06 10.34.04

32.  July – my mom and Chris and I enjoyed attending the Montville bicentennial.

33.  Ryan always enjoys getting his Dairyman’s Chocolate milk,  a daily trip he calls “getting Biggerline Dairymen’s chocolate milk here.”….  and boy what a fit if one of the stores has run out of stock on it…


2015-08-31 06.54.312015-09-13 16.55.382015-09-16 09.27.38

34.  September – we did get 15-20 tomatoes!

35.  Mantua potato festival 🙂

36.  Getting rid of old couch and fridge.  Lots of newer furniture and a fridge, and lots of boxes and other things, came in when Mama/Papa moved!  I’ll be sorting and arranging all these on the current break I just started.

2015-09-27 16.37.392015-10-16 15.06.02

37.  Took Chris to the shore one night, Lake Erie.

38.  Our trip in October to Maryland.  More pics on my blog!  Runaway ramps in WVa.

2015-10-17 17.29.032015-10-17 21.16.17

39.  One of the parks in WVa or Maryland.

40  Fire in our cabin 🙂

2015-10-16 14.39.042015-10-19 09.06.44

41.  First views of the hills.

42.  I want this mailbox!

2015-10-16 17.29.052015-10-25 12.46.35

43.  Our cabin.

44.  November after Gayle/Chuck moved, Chris visited before they gave away the keys — Emotional!!

2015-11-09 07.32.482015-11-26 14.21.10

45.  Breathtaking view of the lake in Auburn on the way to Youngstown.

46.  Happy birthday Chris, mom, Papa, Nancy!

2015-12-13 12.24.192015-12-13 12.29.22

47.  48.  49.  50.  Kraynak’s trip with Jevnikars, Kromer’s, and Becky Freeman 🙂  Boys are at the chocolate store, and Colleen took this lovely selfie in the car (didn’t take a selfie in the Santa chair that I asked her to 😉  )

2015-12-13 13.43.182015-12-19 06.48.122015-12-19 16.27.34

51.  Our one snow event a few weeks ago.  Before and after, unseasonably warm!

52.  Chris at Broadmoor party.

2015-12-25 19.07.01

53.  Pretty house decorations.

October 2015 Maryland vacation!   1 comment

2015-10-17 09.01.28 2015-10-17 09.31.34

Ryan at the cabin   (Swanton, MD)                         Found the private neighborhood beach!

2015-10-16 16.08.502015-10-17 09.07.202015-10-17 13.56.21

Inside the cabin                                                  Walk up and down (really up and down!) the side roads.        Snow


I2015-10-17 13.11.542015-10-17 14.18.01

Great weekend get-away!





2015-10-17 18.56.482015-10-19 09.05.05

Nick clearing leaves off the porch  Side roads had amazing hills!



2015-10-19 09.07.532015-10-16 15.05.30

Monday morning walk


2015-10-17 17.37.452015-10-17 17.37.23

Swallows Falls pics (Oakland, MD)


2015-10-16 15.05.30 2015-10-19 14.25.38-1 2015-10-19 14.06.20 2015-10-19 13.51.52

Cooper’s rock pics on the way home (Bruceton Mills, West Virginia)



Posted October 22, 2015 by Dori in Uncategorized

Christmas Letter 2014   Leave a comment

A year of changes! God continues to lead! Roger had a necessary but elective hernia surgery and is in rehab recuperating from unexpected after-surgery complications. We miss him very much; luckily he is located close to us. We are personally experiencing Christmas being all about family and letting go of small stuff that doesn’t matter!…

In our year of changes I also discontinued overnight travelling with Roger. That was difficult after 5 years, but my mom’s availability changed with other family responsibilities. Going to Youngstown to work with Rog has become a great time of sharing for us, with our often going out for lunch. I go there myself now weekly.

I attended Western Governor’s from September 2013 straight through August of 2014, and then took a break of 2 months. I had a lot of room renovating to do, and we accomplished much sorting and purging! I did return to school in November, and now am recovering from a pre-renovation basement purging project. We will have newly clean and painted walls and floors! I can’t wait until it’s done and we can enjoy our basement again! My next break from school I’m planning for May

One tradition kept, we DID do was go to Kraynak’s Christmas store and display in Sharon with the Jevnikars, a tradition we do try almost yearly! It was a fantastic day with friends – we even met with my high school friend Annette and her family, as they live near there. We also enjoyed just today with the Jevnikars a Christmas party with pizza outing, bowling, and visit with Rog in the large party room at his rehab center.

Chris’s Autism Interventionist specialist still worked with him most of this year, aside from a leave she took.  We are still utilizing IPad and pecs on communication. He enjoys weekend outings with us!

Colleen continues in college, and this year began creating beautiful small animal artwork to sell, made into necklaces, earrings, and other items, and sewn hammocks for reptiles. I enjoyed knitting/crocheting an outfit for her bearded dragon Buddy.

My mom has been spending more time with Ryan lately, with Rog in rehab after surgery, and Gayle often gets him off the bus too. He continues to learn more and more at school and is spelling very hard words!

A very blessed season to all!

2014-01-21 05.47.052014-01-07 10.16.46

January 2014 – Poinsetta suddenly turned red!  Snow started in earnest

2014-02-18 09.31.120213140629

February, 2015 – snow just kept coming!  My first phone in a while to really successfully last more than a few months without having something wrong with it!

2014-03-11 14.50.202014-03-17 08.05.08

March, 2014 – Colleen’s artwork keeps getting better and better – she made it into shows that spring semester!  My last trip with Rog to steubenville/Greene co. PA.

2014-04-13 12.54.182014-04-20 15.30.00

April, 2014 – Winter finally over – first grilling.  Easter day.


2014-05-19 16.57.102014-05-29 16.22.42

May, 2014 – Ryan’s haircut!  Colleen’s birthday at Olive Garden.


2014-06-05 12.57.462014-06-25 16.40.26


June, 2014 – Girls’ day out!  My haircut – finally.


2014-07-24 18.51.232014-08-08 23.49.25

July, 2014 – Baseball, soccer and swimming!

2014-08-03 15.47.15IMG_1702

August, 2014 – the Fest, and Ryan discovered Pacman!

2014-09-07 15.03.49IMG_2058

September, 2014 – Potato festival, and quite a haul at the fruit market!!



2014-10-05 15.09.142014-10-28 18.20.04

October, 2014 – Atwood Lake festival, and DOUBLE rainbow!

2014-11-22 14.44.172014-11-02 13.23.37

November, 2014 – Chris’s birthday, and last day before Rog’s surgery – super day out with friends to Sharon PA

2014-11-02 13.23.372014-12-22 00.12.242014-12-24 13.52.13

December, 2014 – Tree alight, and first of the new painting in the basement.

Posted December 24, 2014 by Dori in Uncategorized

24 years ago part 2   Leave a comment

more on Chris’s birth —


So then we knew we were staying.  Roger sacked out on the pull-out couch and napped for the earlier part of my labor, during which I was able to sit in the rocker for a while, recording some things in my baby book, and walk to the nursery and look at the new babies.  This was after being monitored for about 1 1/2 hours on the monitor.  His heart rate stayed between 110 and 170 the whole time, which is normal.  My contraction numbers were about 15-25 no contraction – up from there to about 80 – mild to severe contraction.  They left me off the monitor for a few hours, I believe, during which was when Roger napped the most.  I remember when I was in the rocking chair it was about 5:00 a.m. and I was just starting to have to use my first level of Lamaze breathing, and the contractions were from between 2-4 minutes apart. 

Read the rest of this entry »

Posted November 18, 2014 by Dori in birthdays, chris

Tagged with ,

24 years ago—   Leave a comment

A portion of my diary from 11-29-90 —



9 days ago our son Christopher Owen was born. He weighed 7 lbs. 7 ozs. and is 20 1/2 inches long. He now weighs 7 lbs. 15 ozs. as of his 11/27 check-up. He’s beautiful!

Last Monday, my due date, I woke at 9:00 a.m. to the phone ringing. I ran to get it, and wasn’t sure if water was going to break (details omitted!). I went back to bed for 3 hours. When I got back up I called the doctor and they said if it stopped it probably was just incontinence, but to call if it did it again or if any pains started.

Read the rest of this entry »

Posted November 17, 2014 by Dori in birthdays, chris

Tagged with ,

Sharing new IPad opportunity from Autism Speaks   Leave a comment

from Doug Flutie’s site.

Autism Speaks’ iPad Grant Application is open today through Friday! 1,176 iPad 4s will be given to financially disadvantaged individuals with autism. They are also including a Kraken A.M.S. case, by Trident Case with each iPad!

Their guidelines are as follows: Applications must be submitted by the person with autism, an immediate family member of the person with autism, or a licensed teacher, social worker or therapist. The Technology Grant Review Committee will review applications and select the iPad award recipients. All applicants selected to receive an iPad 4 will be contacted on December 9. If selected, the iPad will be shipped via UPS directly to the address provided with the application. Others will receive an email informing them of their status.


I already did this for Ryan this morning – hope he gets!  Just wanted to share in case anyone in it would benefit!!  It’s an award program through Autism Speaks with no supporting docs needed!  It ends this Friday Nov.


We are okay – need to update here, but just going minute by minute and day by day.  Roger had a very important surgery and is still in early stages of recovery.  Back in school after 3 month break where I got a LOT done in the house and personal life that was necessary!  As always God is in Control!


2014-10-31 17.45.522014-10-28 18.20.04

Posted November 10, 2014 by Dori in Uncategorized

Testing iPhone post   Leave a comment



Seeing how this works. One more day of Ryan’s two weeks off of any school/camp. He starts swim camp mon!

Will see if this posts …maybe I’ll do better updating this from phone!

Posted June 19, 2014 by Dori in Uncategorized

Christmas letter 2013   4 comments


"For unto us a child is born, unto us a son is given: and the government shall be upon his shoulder: and his name shall be called Wonderful, Counseller, The mighty God, The everlasting Father, The Prince of Peace." Isaiah 9:6.


A very blessed Christmas season to you all!  I am so sorry I did not get cards out this year – I will try and get them out next year along with a printed newsletter.  We enjoyed our Christmas very much and had a lot of family time.  Colleen and I are enjoying our tradition of baking together.  We also sat and watched movies and went to see Pettiti’s garden center’s Christmas display as well.  Unfortunately a bad virus kept us from attending Kraynak’s in Sharon with the Jevnikars but hopefully we will get there next year. 

2013-11-18 11.48.07Chris is flourishing at his adult workshop after some adjustment hiccups last year, and he has a wonderful Autism Interventionist specialist now working with him this year.  This has made a huge difference for him, and we are so grateful!  He also after a few years’ wait finally has working hearing aids and is starting to wear them all day there at school.  He is also being provided the Autismate program for the IPad soon which is an excellent program for autistic individuals to communicate better.  http://autismate.com/Home/Comprehensive-App-For-Autism-With-Visual-Supports/  Chris continues to say occasional words, the most recent being Juice! 3 times as I took a container of orange juice out of our basement refrigerator!

1277992_10202637956815563_1986459377_oWhile continuing college Colleen continues to take care of a lot of animals, the new one of which is Buddy, a Bearded Dragon!  All of us including her boyfriend Scott have said NO more, but, boy, she sure enjoys what we have!  She continues to draw and won great praise from her art teacher, with her art being shown at the school, also.  Colleen baked delicious cookies this Christmas again, making her decorated sugar cookies and buckeyes,  among other things, and I also made my monster cookies.  We wanted to make a gingerbread house that I bought from World Market, but unfortunately, in the strange way things tend to go, the entire kit went missing, and we have yet to find it.  So I suppose it will be a later winter gingerbread house when it is found…. sigh. 

pets collage


2013-11-12 07.06.36I think lately what is striking me is how tall Ryan is, suddenly!  He is growing into a young man before our eyes.  His academic progress is fun to watch, and the fact that he enjoys it all so much is thrilling.  Currently Ryan’s favorite game is Minecraft either on Dad’s IPhone or my Kindle.  He also sometimes plays it on Chris’s IPad (while we hold it!!!) – unfortunately he broke his own IPad last March.  He played Minecraft on his PC for a while but then didn’t want to anymore, for some unknown reason.  Ryan’s high point is outings with daddy every weekend and he loves “the little grocery store” and “Marc’s Store.”  Keeping Ryan by us in a store still can be a challenge as he wants to dash off and get his favorite chocolate milk and chips.  He is getting so independent!  He misses latchkey as he was cut out of it this school year with his school not offering it any longer (he is now in middle school in a different building). 

Graduation from fifth grade was a highlight of Ryan’s year!  It was very emotional to say goodbye to Leroy Elementary School!

image2013-06-06 15.05.14


2013-07-20 20.23.15

Getting back to Port Clinton/Marblehead this summer with the Jevnikars was a wonderful outing!  We hadn’t been there with them since 2005.  Ironically Roger then also was assigned Ottawa and Sandusky counties with his work, so he gets to go back there every few months – I went with him back this fall one time.  It was super having an all-day camping day with our friends in July and we enjoyed swimming, walking, eating barbecue, and traveling to the Marblehead Beach!

2013-07-20 13.47.192013-07-20 13.47.562013-07-20 16.07.272013-07-20 16.07.452013-07-20 18.14.302013-07-20 20.08.162013-07-20 20.12.432013-07-20 20.13.062013-07-20 20.17.092013-07-20 20.27.35


IMG_20130627_122352Things continue to the same in our data entry work – God has enabled us to keep up the 3 two-day trips every quarter! Prayers appreciated for some medical issues for Rog that continue.  I also continue to perform home health care with two companies.   Rog has chosen Columbia College online in Missouri to obtain his bachelor’s degree in social work – just awaiting the right session to enroll in.  I have transferred from Kent State over to the online college Western Govern University, where I continue to major in special education.  I really like it a lot – and of course, though, I loved Kent as well, but the scarcity of any classes locally or at a time that was convenient to go was becoming a bigger problem every semester.  WGU’S degree also adds an elementary school license which may be very handy for flexibility in job-hunting!  They go on a six-month semester, and one can start any month.  I started September 1 and go through the middle of February, and then start again in March.  I can take a month or two off in between any semesters as long as I give them notice.  I also still hope to go back for autism certification and ABA after I receive the bachelor’s.  Can’t believe I will be student teaching in just a few years or less!

Anyone who wants to read the list of my complete courses at WGU can click here — http://www.criscollrj.com/2013/08/15/transfers-and-changes/  ha ha!

I started using My Fitness Pal in January 2013 and have kept up with it fairly well to date.  I am not logging each day now though, as I should, but hope to get back to that today!!!  I have lost another 10 pounds or so – it wavers between 20 and 25 pounds total loss since early 2012.  I need to lose more but do feel so much better being down about one size!  In the new year we hope to attend a water fitness class at the Y every Wednesday.  A very bad cold/virus got me away from walking in late November, and I hope to have my strength completely back when Ryan goes back to school January 6 so that I can start walking every morning again.  The entire family was down with this virus between mid November and mid December – it was awful!!  We also have a really nice exercise bike in the basement that we want to start riding now that everyone is starting to feel better.

3ToqYg6hO4VybqyNnyyHl0cJoYsv0p4r5i0UEAJjJoE2013-06-04 16.42.152013-11-07 08.18.572013-09-23 16.34.48


2013-11-09 13.01.402013-11-12 07.08.172013-11-12 07.12.332013-11-12 07.12.382013-12-24 11.50.312013-12-25 17.42.492013-12-03 18.37.552013-12-04 17.28.01320x480-Student2013-12-07 12.57.18ryan2013-12-10 06.27.412013-12-10 09.03.342013-12-15 10.20.152013-12-15 10.20.392013-12-15 17.15.012013-12-15 17.21.202013-12-15 17.22.232013-12-25 18.12.392013-12-25 18.12.492013-12-19 16.59.352013-12-19 19.35.182013-12-20 19.55.232013-12-25 17.42.18

About hearing aids…   Leave a comment

I just recently got a second hearing aid, after having one left hearing aid since 2006 and wearing it haphazardly.  My hearing loss is less severe – mostly in my left ear, but some in my right.  Ryan’s is second least severe, with his having more loss in each ear than I.  He has refused to wear his hearing aids since first grade, and his school through audiological evaluation at our local deafness school said that his trying to wear hearing aids at that point was more detrimental, as he was tantrumming and not able to focus on his work because he was so uncomfortably stimulated, than just going to school without them.  He has also actually been passing his school hearing screenings which is surprising.

Christopher is most severely affected, with his being almost totally deaf, and he will wear his hearing aids.  He has had one broken now for over a year and we have been struggling with finding a competent hearing aid provider; we found one that we thought was good and then found out that they had twice made his hearing aid mold wrong, making it to uncomfortable for him to wear.  We are now taking him to another provider next week and hope we have better luck.  Of all three of us, Chris will most benefit from his hearing aids.  He also seems to really enjoy wearing them!  I think because his hearing loss is so severe, he is so delighted about hearing anything that he doesn’t really get bothered by the sensory annoyances of them.  Although he has thrown them out of his ears after 5-6 hours before and we have to then find them in whatever room he was in!  So he has to be closely watched while wearing them…

When wearing my left hearing aid off and on for six years, I did experience some better hearing.  However there are drawbacks.  Every background sound is also louder.  I thought perhaps when I got the right ear hearing aid (which I did a few weeks ago) that I would start to hear things better like music playing in a crowded courthouse, for example.  However, as I sat with Rog at Jefferson Co. PA courthouse the other day, every sound in the courthouse was louder even as the music was louder so I could still not hear it any better.  Roger could still distinguish the songs before I could.  Positively, though, I could hear Roger talking better!  And that is important!  And hearing high-pitched birds in the morning, and crickets at night, is also a plus!

About wearing the hearing aids themselves, and thinking of how Ryan is so sensorily over-stimulated with them, after I put them in I feel, for quite a while, like I am all plugged up.  I eventually forgot about that feeling but occasionally it comes back, especially when I’m trying to eat with them in.  I have the full sensation more in the left ear, which has the inside the ear only type of hearing aid, than the right, which has the type of hearing aid that is around the ear with just a tiny tube leading to inside the ear.  I have actually found this right ear hearing aid to be more comfortable and less obvious to see in my ear when I look in the mirror.  The left inside the ear aid also seems to often feel more blocked than the right, but that could be because of the wax buildup my audiologist told me I am experiencing.  Once I visit the ENT and get that cleaned I’ll have to see if I then feel any difference between the ears.  I also quite frequently have a sense of itching after wearing them for several hours.  This has not happened in my right ear yet but I have only had that hearing aid a few weeks.

If we could find a way to write a social story for Ryan to be able to overcome these feelings I’m sure he has as he wears his hearing aids, maybe we can help him to learn to wear them again.  The benefits of his wearing hearing aids would greatly help him!  In school he mostly has one-on-one help, but that may not continue for his whole life  If he can experience group learning in a more complete way by being able to hear better that would be wonderful.

Chris of course will greatly benefit after he gets his correctly fitted hearing aids!  from what I remember the hearing aids help him to hear some, but not great.  I believe they said they get him to almost a 20 dB level, which they explained should be someone speaking to him in a rather louder voice.  I am hopeful as Chris wears his heading aids longer at school that he will pick up more words again (he talked when he was a toddler and young child) and remember how to pronounce them.  He could also enjoy music again that he used to listen to.  He also used to play the organ beautifully – it would be great if he could create music again!



Related Posts Plugin for WordPress, Blogger...

Posted November 9, 2013 by Dori in chris, deafness, Ryan

Tagged with , ,