children, work at home

Ryan’s looking so much older —


Menu trip June 003

Originally uploaded by

criscollrj

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all of the sudden. And when he gets his hair cut he’ll look even older (that always happens). Wonder if I should get his hair cut like we used to do Chris’s (will have to post that look, the bowl cut that was so cute on him!).

We are enjoying the summer as much as possible without going nuts Chris just started school today and I think he had fun. It was a new school for him. They said he liked the water play. He always does!

Colleen is getting a lot of outdoor time with swimming with friends and her boating class.

The summer is really kinda going fast….

One more week until Ryan starts school! I’ll be working more then – I’ve taken a few weeks off.

birthdays, children, colleen

Colleen’s 13th birthday party

I feel remiss that I didn’t take more pictures! I did take a lot of video! By next year our video camera should be digital (we’re saving for one!) so by then that shouldn’t be a problem.

Anyway – we had a very nice gathering at Mama’s and Papa’s, and delicious food and wonderful company. Colleen got very nice gifts and we shared yummy hot dogs, barbecue pork, salads, and cake and other yummies! It was a rainy day so we visited inside.

Thank you all that came and made it a wonderful 13 for Colleen!

Not to confuse anyone – I also uploaded her 12th birthday picture as they were not on here (I started this site right after her birthday last year, like in August or so). So they actually appear first on the list unless I’ve changed their order by then…. To see the 13th birthday pictures just click on that set. [I’m trying to add everything to sets now].

(2020 – not sure if above is about Flickr — at this point I don’t have a Flickr sidebar on my blog but will leave that there in case I ever put it back — )

children, chris, colleen, Ryan

Busy times!


baseball 3

Originally uploaded by

criscollrj

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Ryan went to a baseball game and did great! He went with Papa and Dad. We also visited his new school, and went to an outing with Chris’s school mates. And Ryan went to a birthday party, and so did Colleen. I tried to put some of these pictures in sets to make it less confusing and more organized – lots of work to do!!

Today was Chris’s last day of school. Unbelievable. He is now a 10th grader!

More soon —

autism, sleep, surveys

surveys and too tired to say much else

Ahhh, another work break. I had had one briefly before then worked another week. Now I’ve been off since Thurs. morning and am only working Tues/Thurs. morning this week.

The kids are doing okay – Colleen had a book report due this weekend and she DID do it though I don’t think she completely finished it, OR the book. She was supposed to review math equations with me but unfortunately I feel asleep on the couch with Ryan downstairs so kinda missed my chance. She was very busy this weekend and tired out with a water safety course she’s taking that will go into the summer. I think it’s important for her to have some rewarding summer activities but I wish they wouldn’t start the major portion of the training during the SCHOOL year- GRUMP!!

Ryan is making a lot of gains – he writes his name! – but I am so tired of cleaning up where he can’t get to the bathroom. He IS pee trained Thank Goodness! It’s just I’m so tired of finding poop on the wall or on the floor. I got up this morning half asleep and went to the couch to get my glasses and stepped in it YUCK! We keep telling him where the poop goes but he is not listening. I know it will happen – the pee training happened- but this is just getting gross.

Chris is staying up all night more often for some reason – I think it’s spring allergies. He did the same thing last spring. he’s totally switched over to Abilify now from Geodon and seems okay with it. He’s just very congested. He is still taking Loratadine (generic Claritin) and sometimes I give him Sudafed in the morning.

It is hard for us to bear all these things lately; Chris dumped ANOTHER bottle of dish soap down the shower drain. We buy 2-3 bottles a week because he finds them all the time where we hide them. He dumped all my shampoo last night when he stayed up all night. We hope he sleeps tonight -I am very tired and would probably be asleep on the desk right now if it weren’t for my falling asleep downstairs for about 20 minutes a while ago.

On to some surveys, then a web site I am making for someone that I want to finish by tomorrow 🙂

Surveys from Angela/Heather

autism, autism Ryan, children, colleen, college, deafness, interests, writing

over 100 things

over 100 things…

  1. We have always felt the Lord has a plan for our lives. Part of that plan apparently is that we have children with some special needs. Our goal is to seek Him on His will through this and how to help ourselves and help others.
  2. In my childhood I read a book about a girl that was autistic and rocked all the time. I wish I could remember the name of it – I’ve searched but don’t have a clue. I went to school in the 70’s and 80’s.
  3. When I was pregnant with my son Christopher in 1990 I was super careful and never had any caffeine, even. I did briefly take some allergy/asthma medication, but went off it soon after I was pregnant. It was doctor-approved. I wish I could remember the name of the medication.
  4. I was so nauseous with morning sickness with Chris that I lost 10 pounds in the first trimester. But I gained back 40 pounds then before delivery.
  5. I was only thinking of Down’s Syndrome as something to worry about as a birth defect. No other disability came to my mind. Because I was 24, I tried not to worry about Down’s very much.
  6. I had no prenatal testing in any of my pregnancies – I just felt I’d take things as they came and didn’t want to risk miscarriages and wouldn’t have considered an abortion.
  7. I always wanted four children and feel so blessed to have the three I have – they are so sweet, smart, original, and unique. I took the same direction with my other two pregnancies as my first, except I did drink coca cola with the second two — maybe 1-2 cans every few days.
  8. I’m sure we would have had four children if we’d have had one between Colleen and Ryan – perhaps in 1999. But we didn’t feel prepared – I’m sure the Lord had a plan and as He knows the future He guided us to space Colleen and Ryan as we did, as it wasn’t until 2005 that we began to know about the deafness disability.
  9. Christopher played the organ when he was 2 and seemed to be very gifted musically. He was still talking then.
  10. Christopher lost his speech the first time at 2 3/4 and we blamed it on an event at a babysitter’s where there were no witnesses but the girl said a neighbor boy hit him on the head. He showed no damage per the doctor, but the next day quit talking and didn’t talk for 6 months.
  11. Chris regained his speech about 3 1/2-4 years old but was still diagnosed with mild-moderate autism/PDD at age 4 1/4 in January 2004.
  12. Chris held his speech until he was approximately 6 and then it disappeared again. We believe now that this is when he started going completely deaf.
  13. Chris often through the years has hit his ears hard when he is angry. He once caused an injury to his right ear that needed surgery.
  14. Chris used to speak in many words/some phrases and sang Old McDonald and a song called My Buddy. I know it’s STILL IN THERE.
  15. Chris is now in an autism class where the teachers/aids/curriculum is totally AWESOME and he is progressing very well on tasks, duties, following schedule charts, filing, color sorting, and related tasks.
  16. We want to have the same scheduling and success at home!!
  17. Chris was diagnosed as totally deaf in June of 2005, right after his brother was diagnosed with moderate deafness. He has been evaluated for cochlear implant but it is felt his hearing aides are helpful enough at this time.
  18. His hearing aides would be even MORE helpful if we would WEAR them. Sigh – the stage we’ve been in the last 3 months is that he won’t wear them.
  19. Colleen has always loved to talk and has a wonderful vivid imagination!
  20. Colleen and her dad often had creative times playing with her animals and dolls and made elaborate story lines about them.
  21. Colleen is a gifted artist, and as she’s changed her topics through the years she’s now very talented at creating mouse-created pictures on the computer of guinea pigs and anime images.
  22. We used to have Colleen in ballet class and gymnastics and she enjoyed that very much.
  23. Colleen also has done ice skating many times in her brother’s skating class.
  24. Animals have been long Colleen’s favorite and she has enjoyed guinea pigs, fish, and frogs at her grandma’s, and we had two hamsters in our home, one of whom our special SPICE lived for over a year.
  25. Colleen would like a dog and we hope in the future to be able to get a therapy dog that will help the boys.
  26. Colleen is going to be 13 and is growing up before our eyes into a beautiful young woman.
  27. Ryan was born on my birthday, and was the same length as me, two oz. more, and was born either 3 minutes early or later than me (can’t remember at the moment).
  28. I knew Ryan would be my last child, unless the Lord has an unexpected miracle now in my 40s!
  29. Ryan made our family feel complete.
  30. While Chris woke the usual “every two hours,” and Colleen slept all night but was up all day without napping usually, Ryan had an interesting tactic of being up at night for like 4-5 hours at times straight and then sleeping in the day for 3-4 hours. YAWN.
  31. While I was recuperating after Ryan’s birth, Christopher stayed with his grandma “Mama” Roger’s mom, and I appreciated the rest so much. She had also taken Chris for a while when Colleen was born.
  32. Chris laughed and smiled at both his little siblings when they were babies. He especially loved Ryan’s bathtime as an infant.
  33. I think part of the purpose of Ryan’s deafness, which we discovered when he was 3, was that we would then eventually find out that Chris was deaf. I am not sure we’d EVER have known Chris was deaf if it weren’t for Ryan.
  34. Ryan’s deafness was diagnosed after several months of non-conclusive hearing tests after dual tubes being put in after ear infections, in 2003.
  35. Ryan has not been diagnosed with autism, but has been in speech therapy since early 2003 and also has been in special ed preschool since Winter of 2005. He is being followed by a neurologist.
  36. I will never regret having early intervention for all three of my children.
  37. Colleen has also been watched by early intervention and team leaders, but she has done very well, having learned to cope with ADHD and some shadow syndromes (which I may have as well).
  38. One of my purposes in this journal is to build a resource page in regard to early intervention and other helps for families with special needs.
  39. My husband Roger is a wonderful wonderful person and dad. He is hard working, caring, and never stops trying to make life better for us.
  40. Both Roger and I have the entrepreneur spirit and have tried many arenas to make a supportive living for our family.
  41. Traditional employment has been hard for me to continue through the recent years with the needs of my children but I am grateful for Roger continuing to work to support our needs. God provides.
  42. Roger is a gifted guitarist, poet, and writer. I hope someday he can go back to pursuing these interests.
  43. Roger was the lead guitarist in our church band for a while – he was great!
  44. We no longer attend church due to our boys being hard to handle at times at church. I know the Lord has the timing in His hands for returning to a church.
  45. I love choir greatly (second soprano!) and I hope to someday return to it. I also play guitar and sing solo at times.
  46. Roger is a great cook and barbecuer!
  47. We love to hike at the park and have picnics!
  48. Roger got his associates degree in 2001 – yay Rog! He worked and went to school at night.
  49. Our home was a gift from God, made for us – a steal due to being on the market for a year and being kind of run down, we got it WAY below appraisal value. It needs a lot of work, but it’s ours and is enough room for all. With the basement family room included in the total I estimate the square feet to be about 2500 or so, not including the garage. Our old house was just 920 square feet with no basement or garage.
  50. Our family on both sides worked together to build a beautiful fence in the back yard for safety of the children. It’s so lovely out there!
  51. Okay, more tidbits on just me, then I’ll close. My favorite kind of candy is chocolate.
  52. I am addicted to lip gloss.
  53. I rarely channel flip.
  54. I love pens, paper, organizers, and am addicted to the stationery section of stores.
  55. I feel like I work better on housework when I talk on the phone to someone.
  56. I’m fairly good with money and even better at making beautiful spreadsheets and budgets for it.
  57. I’m not as good at housework but very good at making streamlined, organized spreadsheets of the chores I need to do.
  58. I love making web pages.
  59. I love cashews.
  60. I often eat crunchy peanut butter with dark chocolate chips mixed in.
  61. My house is often a mess even though I pick up just about every day (whirlwind tornado 4-year-old!).
  62. We didn’t used to have a garage or basement and a lot of our stuff is still stored at in-laws or my mom’s. We also haven’t finished cleaning out the attic or shed at our old house that is now on the market.
  63. I own large supply of books on how to get organized.
  64. I’m scared that I won’t be able to handle going to college with 3 kids all with special needs. Originally I was going to go back in 2005 (when I first drafted this list on another journal) and now I’ve postponed that until 2009.
  65. My first degree was Associate of Applied Business, Legal Secretarial. Over the years I’ve considered adding Paralegal, Court Reporting, Medical Transcriptionist, Occupational Therapist, Occupational Therapy Assistant, and Music Therapist. I have now centered again on Court Reporting. That’s what I plan to begin study of in the Fall of 2009 when Ryan starts 1st grade. We’ll see.
  66. I usually think I’m right once I’ve made a decision.
  67. I have a horrible time making a decision.
  68. I do not drink alcohol at all for various reasons though I did drink in college.
  69. I tried smoking cigarettes but couldn’t figure out how to inhale.
  70. I am very glad I never tried pot or any other illegal drug.
  71. I didn’t think I would get pregnant the first time I tried after 3 years of marriage.
  72. I did get pregnant the first time!
  73. I drink icy pop (cola or dr. pepper) often stuck in the freezer for a while but only drink about 12 oz. a day.
  74. I used to hate diet pop EXCEPT for diet rite fruit flavors. I have now learned to like diet Dr. Pepper and Coke Zero. I LOVE COKE C2!
  75. I do enjoy drinking flavored waters with Splenda.
  76. I collected Trixie Belden books as a child and want to pick up some for my daughter to read and me to reread!
  77. I had the fancy hard back version of Little Women and read it at least 20 times.
  78. I had the entire set of Little House books as a child and hope to also get this for my daughter.
  79. I absolutely adore reading, especially Christian historical.
  80. I had all my children’s names picked out at age 18 and they were Christopher, Jeannine, Kevin, and Danielle.
  81. I only used the name Christopher and tired of the other names before I had Colleen & Ryan.
  82. If Chris would have been a girl he’d have been named Danielle, most likely.
  83. Colleen would have been named Ryan if she was a boy.
  84. If Ryan would have been a girl, I don’t know what she’d have been named, though I liked Michelle a lot.
  85. I do not plan to have any more children, though I always wanted four.
  86. For the first time in my life I would be devastated if I were to get pregnant.
  87. If I did have another baby, I would know it was in the Lord’s plan, and I would cope best I could.
  88. I would probably want a girl…
  89. When I was little everyone was forced to call me Laura or I wouldn’t answer (that was not my name!)
  90. I got very good grades in school but was embarrassed about it.
  91. In 9th grade I purposely failed some tests because I thought that would make me popular.
  92. By 12th grade I had to squeeze tons of classes in and just about killed myself to get straight A’s and get all my credits in for nursing school.
  93. I did get the straight A’s, and most everyone still liked me, in 12th grade, but I did gain 30 pounds and got migraines and eye twitches from all the stress that year.
  94. I only pursued nursing for one quarter and then switched to secretarial.
  95. When I was almost done with secretarial I almost switched to graphic arts, but didn’t (took one quarter of classes, loved them, but then got married and didn’t go to school anymore after my degree).
  96. I usually made the Dean’s List in college.
  97. Sometimes I miss working, for one second, but then think how insane I am.
  98. I usually thank God I’m home so I can do things like move furniture and improve my house without having to do it on weekends.
  99. I love being home and playing with my kids.
  100. I wrote a book in high school about a Cambodian girl.
  101. I wrote a book in elementary school about orphans.
  102. I also wrote a book in early high school about an overweight girl named Karen. It disappeared. It was the best book I ever wrote.
  103. I wrote about 500 poems but haven’t written any in years.
  104. My husband wrote me poems that were beautiful when we were dating.
  105. April of 2004, I was up to 187 lbs. I lost 18 pounds last summer.
  106. I gained back all of it, and then lost the same approx. weight in 2005. Luckily I’ve only gained back 10 this time.
  107. I can recite most of the Veggietales Silly Songs tape, and know what key the songs will be in.
  108. I started playing guitar when I was 10.
  109. I started singing when I was 6 or 7.
  110. I sang my first solo at 11 in front of the class (Let me Be There by Olivia Newton John – it was supposed to be a punishment for having not done my book report.)
  111. I sleep with a care bear given me by my husband in 1984. (Friend bear)
  112. I wish I could take more classes just for fun.
  113. I love to write.
  114. I hardly ever wear makeup. But I just recently renewed my Avon business and have now bought new makeup, and Colleen is now wearing a little makeup, and even my mom is interested in some now. Yay – makeover party coming up!!
  115. I went back to typing at home from Jan. 06 until end of August. Now that Ryan is just in preschool and not daycare (the daycare didn’t work out), I’m back to just “being home.”
  116. I really like that…..
colleen, writing

question on kids’ blogs

If you were a mom of an 11 1/2 year old girl, would you let her have a blog on here? Set to friends only and only her friends you know? Set with your email as the default email?

That’s what I’m thinking of doing, and I think she’ll be safe that way, but wondered what you all thought? I can put a private journal flag on the intro page so strangers wouldn’t be email her to try and read it, but could make the entries friends only so that her friends in real life could read and comment. I thought she could post her animal pictures in photobucket to share.

What do you think? Any stories (horror or otherwise)?

d